From thesicktimes.org
Missing the gig: When your subculture leaves you behind with Long COVID - The Sick Times
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“Maybe now vocalists will finally start bringing their own mics,” I tweeted in the first days of March 2020. My virtual audience was mostly friends I met by participating in subcultures in and adjacent to the DIY tendency of hardcore punk rock. In those early days, we on the cultural fringes...
on Sat, 5AM
From thesicktimes.org
Still Here, November 15: Links and transcript - The Sick Times
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This week, we celebrate one year of The Sick Times! Also: the latest COVID-19 numbers, and recapping the Fall 2024 PolyBio Symposium on Long COVID Research.
#lc #PASC #pwlc #COVID #novid #COVID19 #COVID_19 #sarscov2 #LongCovid #PostCovid
10h ago
From thesicktimes.org
Press release: The Sick Times announces one year of covering the Long COVID crisis - The Sick Times
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“Our reporting on Long COVID remains as vital today as it did when we launched,” executive editor Miles W. Griffis said. “Many of our colleagues in the media continue to minimize the disease and the ongoing COVID-19 pandemic — but not The Sick Times. We report on the most common adverse outcome...
on Thu, 3PM
From thesicktimes.org
The trouble with recovery stories - The Sick Times
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Recovery stories have been popular in the media lately. Two recent stories have evoked a wide range of reactions among those with ME, with some gaining hope from them and supporting the right for everyone to share their experiences as they choose; and others feeling let down by narratives that...
on Mon, 7PM
From thesicktimes.org
Live blog: Following the Fall 2024 Polybio Research Symposium on Long COVID - The Sick Times
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On Friday, a number of prominent Long COVID scientists are set to present updates on their work at the PolyBio Research Foundation’s fall research symposium. PolyBio is a leading organization in supporting formative Long COVID science; it has backed research into Long COVID’s biological causes...
on Nov 8
From thesicktimes.org
We set out to make our ‘invisible illness’ visible in South Africa with SICK Pride - The Sick Times
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How can people with energy-limiting conditions march for our rights if we have negligible physical capability and exertion worsens our symptoms? My colleague Mlindeni Gabela and I are pioneering a new kind of protest in South Africa: SICK Pride. SICK stands for the Society for the Inclusion of...
on Nov 5
From thesicktimes.org
A brief, oral history of mask blocs: Part 3 - The Sick Times
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U.S. government officials began introducing mask ban proposals and legislation during the summer and fall of 2024, despite the ongoing COVID-19 pandemic that has killed at least 40,000 Americans this year. Mask blocs in impacted regions were sometimes the only groups poised or willing to...
on Oct 29
From thesicktimes.org
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“Come back to me when you start wanting children,” my gynecologist said. I had asked about the implications on fertility, thanks to my Poly-Cystic Ovarian Syndrome (PCOS) diagnosis — and was dismissed once again. It enveloped me with such despair. For over two years I was shunted between varying...
on Oct 28
From thesicktimes.org
Still Here, October 25: Links and transcript - The Sick Times
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This week, co-hosts Betsy Ladyzhets and Miles Griffis talk with podcast producer James Salanga about an Australian clinical trial looking at low-dose naltrexone for people living with Long COVID and ME.
on Oct 26
From thesicktimes.org
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Earlier this week, Grammy-award winning musician Solange Knowles briefly shared three diagnoses and paid gratitude to the chronic illness community. Knowles replied in the comments of a Shaun Ross Instagram post that detailed his experience with Long COVID and postural orthostatic tachycardia...
on Oct 19
From thesicktimes.org
Still Here, October 18: Links and transcript - The Sick Times
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This week, a look at the new Long COVID and complex disease center at Mount Sinai, with commentary from co-hosts Betsy Ladyzhets and Miles Griffis.
on Oct 19
From thesicktimes.org
Clinical trials explore how Low-Dose Naltrexone could help people with Long COVID - The Sick Times
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Observational studies suggest Low-Dose Naltrexone may benefit some people with Long COVID and ME. People with these diseases have shared their experiences with LDN in online communities, reflecting the value of patient knowledge. Now, LDN is attracting growing interest from researchers. Current...
on Oct 18
From thesicktimes.org
Kamala Harris responds to voter with Long COVID - The Sick Times
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Last night during a town hall with the Spanish-language news network Univision, Vice President and presidential nominee Kamala Harris received a question from a person with Long COVID who applied for Social Security Disability Insurance (SSDI) three years ago and still hasn’t received a decision...
on Oct 17
From thesicktimes.org
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Last week, a new center serving people with Long COVID and related complex chronic diseases opened at Mount Sinai Health System in New York City. Led by Dr. David Putrino, the center will be a hub for diagnosing these diseases, helping patients manage their symptoms, and running clinical trials...
on Oct 17
From thesicktimes.org
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Filmmaker and popular YouTuber Jesse Ridgway, 32, recently shared his year-long experience with Long COVID on social media. Well known as “McJuggerNuggets” on YouTube, Ridgway has accumulated over two billion views on his videos and gathered more than four million subscribers on his channel. He...
on Oct 17
From thesicktimes.org
A brief, oral history of mask blocs: Part 2 - The Sick Times
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Established mask blocs — mutual aid groups distributing high-quality respirator masks for free — often support newer blocs with educational materials or mask stock to get started. In part two of our three-part series, organizers describe how they created resources for other blocs to get started,...
on Oct 9
From thesicktimes.org
Research updates, October 8 - The Sick Times
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A Life study of over 700 people with Long COVID found a significant disruption in blood supply to peripheral tissues. The disruption is caused by microvascular loss and hemodynamic decrease and can lead to hypoxia among other outcomes, the study stated. The author proposed that this disruption...
on Oct 9
From thesicktimes.org
Still Here, 10/4/2024: Links and transcript - The Sick Times
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The podcast pilot covers the latest COVID-19 numbers, last week's NIH RECOVER-TLC meeting, and a nasal spray effective at blocking respiratory viruses.
on Oct 5
From thesicktimes.org
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Atinuki “Tinu” Abayomi-Paul, a prominent writer and disability advocate, died on September 26 at home in Texas. She was 52. Abayomi-Paul was well known in the Long COVID and disability community for her writing, speaking, and mutual aid organizing. She was the founder of Everywhere Accessible,...
on Oct 5
From thesicktimes.org
Nursing aides plagued by PTSD after ‘nightmare’ COVID conditions, with little help - The Sick Times
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A KFF Health News investigation (republished by The Sick Times) reveals that employers and the government have offered nursing aides little assistance for PTSD and other ongoing maladies triggered by hazardous work during the pandemic.
on Oct 4
From thesicktimes.org
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Last week, a research symposium in Bethesda, Maryland kicked off RECOVER-Treating Long COVID, a new phase of the National Institutes of Health (NIH)’s flagship research program. The meeting included three days packed with research presentations and panel discussions aiming to advance clinical...
on Oct 1
From thesicktimes.org
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In February, the National Institutes of Health (NIH) published a controversial paper that aimed to characterize myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS). The study, published in Nature Communications, took eight years and cost $8 million. Participants flew in...
on Sep 27
From thesicktimes.org
Millions of Americans have Long COVID. Will Kamala Harris acknowledge them? - The Sick Times
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Advocates say that people with Long COVID, a potentially debilitating chronic disease that can impact all parts of the body, represent a growing voting bloc in this year's presidential election. Leaders from Long COVID advocacy groups and the broader disability community are considering how to...
on Sep 24
From thesicktimes.org
Live blog: Following the RECOVER-Treating Long COVID kickoff event - The Sick Times
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This week, the U.S. National Institutes of Health (NIH) starts a new phase of RECOVER, its flagship, $1.6-billion Long COVID research program. RECOVER has convened leading scientists in a three-day meeting to advance new clinical trials. Following the program’s launch in 2021, RECOVER has drawn...
on Sep 23
From thesicktimes.org
For people with severe Long COVID, medical care is out of reach - The Sick Times
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Getting medical help for any severity of Long COVID is challenging. The disease can manifest as over 200 different symptoms, ranging in severity from mildly impacting quality of life to completely debilitating. For those in the most severe categories — who are barely or completely unable to...
on Sep 17
From thesicktimes.org
Introducing Long COVID Essentials, a new resource series - The Sick Times
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We are excited to announce Long COVID Essentials, a new collaboration between The Sick Times and Long COVID Justice. Over the next several months, we’ll be publishing over 30 resource sheets that provide foundational information about navigating Long COVID. Each sheet can be printed and/or...
on Sep 16
From thesicktimes.org
A brief, oral history of mask blocs: Part 1 - The Sick Times
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Mask blocs are grassroots mutual aid groups that distribute high-quality masks, such as N95s, for free in response to public health failures during the ongoing COVID-19 pandemic. Many were created and are led by disabled people, many of whom had little or no prior organizing experience. Many...
on Sep 10
From thesicktimes.org
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More than four years into the pandemic, There’s Nothing Wrong with Her is the first novel from a mainstream American publishing company to explore the experience of Long COVID. Hopefully, more will follow to further explore — and educate readers about — the nature of this illness, but for now,...
on Sep 10
From thesicktimes.org
Iconic musician Sérgio Mendes dies while battling Long COVID - The Sick Times
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Los Angeles: World-renowned musician Sérgio Mendes, 83, died while fighting the effects of Long COVID, according to a recent statement by his family. “For the last several months,” the family wrote, “his health has been challenged by the effects of long term COVID.” Mendes died on September 5,...
on Sep 7
From thesicktimes.org
Mask bans and proposed bans by state - The Sick Times
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By Justine Barron This list includes most U.S. bans on masks and disguises at the federal and state level, including proposed bills. Most of these were passed during the mid-20th century to address the Ku Klux Klan (KKK), often alongside bans on burning crosses. This list does not include every...
on Sep 4
From thesicktimes.org
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As a family physician seeing COVID-19 in my practice, I came to recognize that so many of my colleagues and patients had no idea how to keep themselves safe from the coronavirus, nor were they aware of its long-term risks. I saw the need to take action and effect change, which ultimately led me...
on Sep 3
From thesicktimes.org
“Perfect storm” of criminalization: Analyzing mask bans - The Sick Times
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While the conversation around mask bans has focused on new laws and bills, 21 states and many municipalities have laws banning masks and/or disguises in different settings, which is more than other organizations have reported. Even where these bans have apparent limitations or exemptions, the...
on Sep 3
From thesicktimes.org
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Guided by a strong commitment to community care, a diverse group of queer performers, drag kings, and other event organizers are filling the gaps of global government failure during the ongoing COVID-19 pandemic. Through clean air organizations, mask requirements at shows, and other COVID-19...
on Aug 27
From thesicktimes.org
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Once upon a time, my job was being professionally organized. I was the executive assistant at a major corporation in Chicago. My job entailed various administrative duties, most of them revolving around keeping people organized and where they needed to be. I was excellent at it, made a good...
on Aug 27
From thesicktimes.org
National COVID-19 trends, August 20 - The Sick Times
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This summer’s COVID-19 surge just keeps going. Disease levels remain very high and increasing across much of the U.S., according to wastewater surveillance and our limited healthcare system data. Meanwhile, mpox (formerly called monkeypox) has reemerged as a global health threat.
on Aug 27
From thesicktimes.org
Grappling with Long COVID as an elite athlete - The Sick Times
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Scientists are working to unravel the mechanisms behind Long COVID and some have turned to studying sports competitors to better understand how it affects intense physical performance. Now, their efforts are beginning to shed light on why Long COVID hits some athletes — especially those in...
on Aug 16
From thesicktimes.org
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Betsy Ladyzhets spoke with Dr. Monica Bertagnolli, director of the National Institutes of Health (NIH), in a wide-ranging interview discussing the agency’s efforts to further research into Long Covid and related diseases. In the interview, Bertagnolli described a new phase of RECOVER, called...
on Aug 14
From thesicktimes.org
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This spring, a record-breaking heat wave swept through Brazil, triggering fires, exacerbating drought, and testing the country’s energy grid. Fernando Santos, 33, who had been living with Long Covid and postural orthostatic tachycardia syndrome (POTS) since June 2021 and had made some progress...
on Aug 12
From thesicktimes.org
Double trouble: Hypermobility may increase Long Covid risk - The Sick Times
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“For a middle-aged woman who hasn’t had any actual injuries, I’ve had a huge amount of physical therapy,” says Liza DiLeo Thomas, a 52-year-old emergency medicine doctor in New Orleans and mom to five kids. “My neck muscles were always weak, my knees were bad. In retrospect, I was actually...
on Aug 6
From thesicktimes.org
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Last week, Sen. Bernie Sanders introduced the Long Covid Research Moonshot Act of 2024. The bill allocates $1 billion in federal funding per year for the next 10 years for Long Covid research, treatments, public health education, and expanded healthcare. A draft version of the Act received...
on Aug 6
From thesicktimes.org
In South Africa, Long Covid is an afterthought to Tuberculosis - The Sick Times
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Tuberculosis (TB) and Long Covid are two diseases that have some overlapping symptoms. The two are often mistaken for each other in South Africa. Long Covid is poorly understood and acknowledged in South Africa, and mostly dismissed, say people living with the disease. And it’s worse if you’re...
on Aug 1
From thesicktimes.org
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A new drug approved months ago to help prevent Covid-19 infections could be a game changer for high-risk people — if they can get their hands on it. But many say they have struggled to access the medication.
on Jul 31
From thesicktimes.org
Olympics volunteers resign over lack of Covid-19 precautions - The Sick Times
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Earlier this month, a group of Olympic volunteers demanded Covid-19 precautions at the 2024 Paris Olympics, stating they would resign if precautions weren’t implemented. “Covid-19 pandemic threat denial is not an antidote to contamination,” the volunteers wrote in a press release. “If no steps...
on Jul 30
From thesicktimes.org
This is what it feels like: Artist visualizes Long Covid symptoms - The Sick Times
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With a multi-systemic disease as debilitating as Long Covid, it isn’t always easy to explain the constellations of symptoms we experience. So, In late 2023, the Oregon-based artist Daphne Mir started the project “Illmarks” to conceptualize the sinister Long Covid symptoms they developed after a...
on Jul 27
From thesicktimes.org
Wastewater surveillance for Covid-19 keeps evolving. Here’s what you need to know. - The Sick Times
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As governments have scaled back their tracking of Covid-19 — even as the pandemic continues — many people who still take precautions have increasingly relied on wastewater surveillance to follow disease trends. But wastewater data can be confusing and inconsistent, especially as surveillance...
on Jul 24
From thesicktimes.org
National Covid-19 trends, July 16 - The Sick Times
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The U.S. is well into our summer Covid-19 surge: even the CDC’s wastewater dashboard now acknowledges that the country is facing high coronavirus activity. Yet most travel and gatherings continue without any precautions, making it easier for the latest variants to spread.
on Jul 17
From thesicktimes.org
My daughter has Long Covid. It transformed me into an advocate for Long Covid kids. - The Sick Times
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The first few weeks of fifth grade were going smoothly for my ten-year-old daughter, until one evening when I found her lying still on the couch, flat on her tummy, not moving, nor uttering a single word. I called out her name a few times but got no response. I walked over to her, touched
on Jul 16
From thesicktimes.org
Q&A: Behind the scenes of the Patient-Generated Hypotheses Journal with Vijay Iyer - The Sick Times
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Last week, the Patient-Led Research Collaborative (PLRC), the research organization led by people with Long Covid, published the second issue of its Patient-Generated Hypothesis Journal. This journal publishes scientific manuscripts that aim to advance research into Long Covid and related...
on Jul 5
From thesicktimes.org
Research updates, July 2 - The Sick Times
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A new preprint from the National Institutes of Health’s RECOVER initiative found that children who had Covid-19 were at a higher risk of developing serious kidney problems later on, even if they had no previous kidney conditions. The study examined the electronic health records of more than 1.8...
on Jul 3
From thesicktimes.org
Don’t just breathe clean air, breathe it well - The Sick Times
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It was my dentist who recommended that I read Breath, a nonfiction book that chronicles Nestor’s scientific and personal journey into the research and impacts of breath on the human body, the benefits of certain breathing techniques, and the detriments of others. He probably meant to publish it...
on Jul 2