From disabledginger.com
How Did We Get Here and What Comes Next?
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Disabled people have been warning others for nearly 5 years that eugenicist Covid policies would lead to a rise of fascist, racist, bigoted, misogynistic hatred. It's here now. So what’s next?
on Nov 8
From disabledginger.com
How to Stay Covid Safe When in Hospital
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A guide to navigating the risk of hospital acquired Covid - as well as how to manage overall risk of nosocomial infections and hospital derived complications.
#n95 #ableism #Pandemic #eugenics #sarscov2 #WearAMask #disability #nosocomial #CovidIsNotOver #COVIDisAirborne
on Jul 9
From disabledginger.com
"It's Just Anxiety"... Or Perhaps They've Misdiagnosed You
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Patients with POTS are frequently misdiagnosed as anxious. An exploration of the diagnostic process, the gaslighting and barriers patients face when dealing with this debilitating condition.
on Nov 4
From disabledginger.com
Learning to Let Go - How To Accept Your Chronic Illness
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When you're chronically ill - your world turns upside down.Managing your illnesses, staying on top of symptoms and navigating healthcare is exhausting. Learning to Let Go can make things easier.
on Oct 29
From disabledginger.com
Covid and the 2024 Olympic Games - Denial on the World Stage
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"No Olympic Athletes will get Long Covid! No one I know even has it!" An examination of the denial, gaslighting and ignorance that exists around chronic illness and invisible disabilities.
on Oct 23
From disabledginger.com
A Plea to Maskless Healthcare Workers from Vulnerable Patients
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If you see a mask - wear a mask. Better yet - wear a mask all the time and show us you understand that we're still IN a pandemic. We are depending on you to keep us safe - please don't betray that.
on Oct 21
From disabledginger.com
The Disabled Ginger | Broadwaybabyto | Substack
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A place to learn about disability rights, being chronically ill during a pandemic and how to cope with losing your health & independence. Click to read The Disabled Ginger, by Broadwaybabyto, a Substack publication with thousands of subscribers.
on Oct 18
From disabledginger.com
A Five Part Guide to Accessing Healthcare When Chronically Ill
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If you're disabled - you've likely found yourself saying "I won't go to the ER unless I'm literally dying." Here's a 5 part series of articles designed to make the hospital experience more manageable.
on Oct 18
From disabledginger.com
Living Life Upside Down - An Intro to POTS/Dysautonomia
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I live my life horizontally thanks to a condition called POTS (Postural Orthostatic Tachycardia Syndrome). It's poorly understood, often misdiagnosed and can be devastating to quality of life.
on Oct 10
From disabledginger.com
MCAS and Histamine - Diet isn't the ONLY Answer
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Mast Cell Activation Syndrome is a beast of a condition that can impact every part of your life. The good news is there are many things you can do on your own to improve symptoms and reduce flares.
on Oct 5
From disabledginger.com
You’ve Been Sick for Years…. Just Die Already.
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An exploration of rampant ableism and how the pandemic changed how disabled people are treated.
on Oct 4
From disabledginger.com
All the Tears I Can Not Cry and All The Pain You Will Not See
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I'm allergic to my tears - I can't cry. I've become excellent at hiding my pain. But why should we hide it? Why shouldn't we allow people to see our suffering? Ask them to face our disabilities?
on Sep 30
From disabledginger.com
When You're Allergic to Everything and Nothing... That's MCAS
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An intro guide to Mast Cell Activation Syndrome and how it has fundamentally changed my life. Living under the constant threat of anaphylaxis is hard - but there are ways to make it easier.
on Sep 23
From disabledginger.com
Libraries - My Safe Haven as a Chronically Ill Child
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My public library was my favourite place to go when I was a kid. I savoured the peace, quiet and calm. Looking back - my illnesses were WHY I was drawn to the library. Kids need a port in the storm.
on Sep 18
From disabledginger.com
4 Years into the COVID pandemic and disabled people are still not safe.
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A look at a specific example of how unsafe the world is for disabled & high risk individuals & how even friends and loved ones can’t (or won’t) take steps to protect us.
on Sep 16
From disabledginger.com
Family Abandonment During Covid Pandemic. They 'Don't Do Sick'.
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A look at relationship dynamics, ableism and the importance of setting (and sticking) to personal boundaries
on Sep 15
From disabledginger.com
There's No Welcome Guide to the World of Chronic Illness - But There Should Be
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When you become chronically ill - you're on your own. No one teaches you how to navigate this new world, how to adapt to your new circumstances or find help. What do you most want to learn?
on Sep 13
From disabledginger.com
Bonus Back to School Edition: Keeping Kids Covid Safe
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A look at the struggles that Covid aware parents (and children) are facing as we head into another school year. The increase in bullying, peer pressure and mocking for masking is a BIG problem.
on Sep 8
From disabledginger.com
Pregnancy Will Likely Kill You but You May Want Babies!
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A look at misogyny in medicine, bodily autonomy, infertility and the struggles women face with not being trusted to make decisions for their own body.
on Sep 2
From disabledginger.com
Why I Started The Disabled Ginger and How Writing Saved my Life
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A look at how writing helped me accept and process my disabilities, find my voice and learn to be an advocate.
on Aug 26
From disabledginger.com
Professor & Expert in Rare Disease HLH Dies after Medical Staff Ignore his Expertise
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A look at the death of Prof Amit Patel and the very real problem of medical gaslighting, neglect, discrimination and dismissal.
on Aug 26
From disabledginger.com
If You're Newly Disabled... It's Time to Learn About Gaslighting
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Whatever the disability or chronic illness - gaslighting will be something you have to endure. A discussion on how and why gaslighting happens, how to cope with losing friends & finding your tribe.
on Aug 23
From disabledginger.com
Nassau County, NY Makes Masking Illegal - Why Medical Exemptions Aren't the Answer
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Defendants of mask bans point to medical exemptions as proof that disabled people have nothing to worry about. They're wrong. A look at why bans are ableist, discriminatory and dangerous.
on Aug 23
From disabledginger.com
We Are Witnessing Real Time Eugenics... and People Don't Seem to Care.
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Mask bans and revocation of medical exemptions have been all over social media this week - and anti-maskers are reacting with glee. They are celebrating disabled people losing a tool for protection.
on Aug 16
From disabledginger.com
North Carolina Passes HB 237 and Bans Medical Masks in Public
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This discriminatory and ableist bill puts lives at risk and further isolates vulnerable people from society. It's pandering to anti-maskers who seek to punish disabled and high risk individuals.
on Aug 15
From disabledginger.com
My Most Dangerous ER Experience and How My Advocate Saved My Life
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A story of medical gaslighting, negligence and neglect that very nearly cost me my life - and how my accidental advocate (untrained and unprepared) saved me.
on Aug 5
From disabledginger.com
Tips for Surviving a Hospital Trip When Chronically Ill
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When you're disabled - the decision of whether or not to go to the hospital is incredibly complex. When you have no choice but to go - there are ways to make it easier.
on Jul 27
From disabledginger.com
How to be an Effective Advocate for a Disabled Patient
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Disabled patients are rightfully terrified of being hospitalized. We are stripped of our agency and control in a hospital environment. Having an effective advocate can vastly improve the experience.
on Jul 25
From disabledginger.com
"I Won't Go to the ER Unless I'm Literally Dying"
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When you're disabled or chronically ill - learning when to seek medical care (and what that care will look like) is a painful and traumatic journey. It often ends in "I will never go to the ER again."
on Jul 22